My Sister Katie whom we lost to PVOD in 2011.
This disease is rare! Let's find a cure!
My Sister Katie passed away from a very rare Lung Disease called Pulmonary Veno-Occlusive Disease in 2011. She was 20 years old. This disease just took her as quick as we knew she was sick. There is no research on this disease. Brian (Katie's Fiance) has created an organization (The Rite to Breathe) for research and to honor Katie. Brian will be running races in honor of Katie.
Trying to raise money for awareness of this heartbreaking disease and for a scholarship fund at Ivy Tech for Culinary.
Directly from The Rite to Breathe Facebook:
Bringing the fight to Katie's disease one race at a time.
Please 'Like' our page to bring awareness & support
Read the whole story about overcome odds to find hope
http://thenewsdispatch.com/articles/2013/03/14/sports/doc5141fdf28871b801073304.txt
_______________________________________________________
Mission
Please donate and support our cause at
https://fundly.com/the-rite-to-breathe/
Company Overview:
The Rite to Breathe is a non-profit organization that is currently raising funds on purely donation to bring hope against the disease called PVOD.
Brian Piecuch will be running over +35 races this year to bring awareness and support in hopes to improve diagnostic testing and treatments. Currently, there are a few options for family impacted by this dread disease.
If you want to help support our cause please join our fight by 'liking' our page and if you truly feel the need to help please donate to https://fundly.com/the-rite-to-breathe/
$8,000 will be going to IU Health in Indianapolis for clinically research and $2000 will go to her scholarship fund that Ivy Tech to help a young inspiring culinary professional with their schooling.
Once again thank you all for your support!!!!
General Information:
Also go to our twitter page for daily updates of training for upcoming races! https://twitter.com/Rite2breathe
The Rite to Breathe Email: therite2breathe@gmail.com
Educate yourself on PVOD: http://emedicine.medscape.com/article/1464015-overview
My Sister Katie passed away from a very rare Lung Disease called Pulmonary Veno-Occlusive Disease in 2011. She was 20 years old. This disease just took her as quick as we knew she was sick. There is no research on this disease. Brian (Katie's Fiance) has created an organization (The Rite to Breathe) for research and to honor Katie. Brian will be running races in honor of Katie.
Trying to raise money for awareness of this heartbreaking disease and for a scholarship fund at Ivy Tech for Culinary.
Directly from The Rite to Breathe Facebook:
Bringing the fight to Katie's disease one race at a time.
Please 'Like' our page to bring awareness & support
Read the whole story about overcome odds to find hope
http://thenewsdispatch.com/articles/2013/03/14/sports/doc5141fdf28871b801073304.txt
_______________________________________________________
Mission
Please donate and support our cause at
https://fundly.com/the-rite-to-breathe/
Company Overview:
The Rite to Breathe is a non-profit organization that is currently raising funds on purely donation to bring hope against the disease called PVOD.
Brian Piecuch will be running over +35 races this year to bring awareness and support in hopes to improve diagnostic testing and treatments. Currently, there are a few options for family impacted by this dread disease.
If you want to help support our cause please join our fight by 'liking' our page and if you truly feel the need to help please donate to https://fundly.com/the-rite-to-breathe/
$8,000 will be going to IU Health in Indianapolis for clinically research and $2000 will go to her scholarship fund that Ivy Tech to help a young inspiring culinary professional with their schooling.
Once again thank you all for your support!!!!
General Information:
Also go to our twitter page for daily updates of training for upcoming races! https://twitter.com/Rite2breathe
The Rite to Breathe Email: therite2breathe@gmail.com
Educate yourself on PVOD: http://emedicine.medscape.com/article/1464015-overview
This is what I (Tonya) found as a description-type about PVOD.
In most cases, the cause of pulmonary veno-occlusive disease is unknown. The high blood pressure occurs in the pulmonary arteries, which are the lung arteries directly connected to the right side of the heart.
The condition may be related to a viral infection. It may occur as a complication of certain diseases such as lupus, or as a complication of leukemia, lymphoma, chemotherapy, or bone marrow transplantation.
The disorder is most common among children and young adults. As the disease gets worse, it causes narrowed pulmonary veins, pulmonary artery hypertension, and congestion and swelling of the lungs.
The condition may be related to a viral infection. It may occur as a complication of certain diseases such as lupus, or as a complication of leukemia, lymphoma, chemotherapy, or bone marrow transplantation.
The disorder is most common among children and young adults. As the disease gets worse, it causes narrowed pulmonary veins, pulmonary artery hypertension, and congestion and swelling of the lungs.